tag:blogger.com,1999:blog-12625691.post6700101922203602893..comments2024-02-29T01:43:23.900-05:00Comments on Women's Bioethics Blog: PatientsLikeMe -- a new paradigm?Linda MacDonald Glennhttp://www.blogger.com/profile/02378544626277000243noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-12625691.post-86077318581424426832008-03-24T12:14:00.000-04:002008-03-24T12:14:00.000-04:00While I'm a bit hesitant about the pharma involvem...While I'm a bit hesitant about the pharma involvement, I'm all for the rest of it. Having a chronic disease myself, I'm very aware of the support groups that exist for my condition, and participate in forums where we do trade information about what works and what doesn't (and that includes doctor information, not just medications). Without those groups, I wouldn't know about a lot of advances that are coming down the line for my particular condition, or have the hope that a cure might be found.<BR/><BR/>Then again, openness is never much of a concern for me - I've favoured a very David Brin-ian information wants to be free, and will be, attitude for most of my adult life. :-)Kelly Hillshttps://www.blogger.com/profile/15027400439081662699noreply@blogger.com