Wednesday, February 28, 2007
The instant where parasite meets host-cell has translated into enduring health struggles many people living in New York. Studies of the Centers for Disease Control and Prevention predict over 100 million people who ride the MTA (in a given day) are unaware they are infected with the HIV virus. HIV/AIDS infections have reached epidemic measures throughout the city. Prevalence of STI's in New York City are consistently among the highest in the country. The actions of New York's Department of Health reflect that of a responsible public office. It has allotted its citizens access to life-preserving tools by following the preceding endeavors such as, BYOC (bring your own condom), where high-traffic atmospheres (ie, restaurants, retailers, bars, clubs and.... the subway) are used to the advantage of contraceptive distribution.
Or, are they encouraging “inappropriate sexual activity?” Catholic leaders have expressed concerns of New York's agenda to increase condom distribution. Edward Cardinal Egan and Brooklyn Bishop Nicholas DiMarzio have voiced criticism against the city's decision to distribute 26 million condoms, regarding it as “tragic and misguided.” They have voiced concern for the integrity of New York's “societal standards” and reject the “blanketing”of neighborhoods with condoms. Their concerns were heard by New York City's Mayor Mike Bloomberg who disagreed with the views. "This is not an issue of faith - this is a health issue for the city.” “[T]he Health Department has to work with the real world of people not practicing protected sex, not practicing abstinence, and this is a way to keep people alive.”
Surprisingly, I am in agreement with Mayor Bloomberg. As the issue demanded, he has come to understand the gravity of the HIV/AIDS epidemic in New York and has recognized time as a crucial factor. His response to reality, and neglect—if only temporary—of ideology is a deviation from his typically conservative perspective. While ethical concerns are appropriate, they will likely remain secondary to the reality of a public health crisis.
Having observed New York's efforts first hand, I feel an effective pursuit will be more aggressive. I've yet to see any NYC condoms and have heard little of them outside of media reports. For more enduring effect, efforts should continue to strive to permeate the public. I would urge the Health Department to join forces with club owners and promoters to educate the public and distribute contraceptives throughout New York's nightlife. I feel the public would embrace such efforts and will increasingly become involved in the maintenance of their health.
Here are several articles reflecting media coverage of NYC condoms:
NY Daily News:http://www.nydailynews.com/news/local/story/498292p-420070c.html
Yahoo News: http://news.yahoo.com/s/afp/20070214/hl_afp/afplifestyleus;_ylt=Ar.GIjZvcEI2wJJHn23oi83VJRIF
Tuesday, February 27, 2007
Saturday, February 24, 2007
The first, in coordination with the Dana Foundation’s Brain Awareness Week, is a lecture on Why Women Should Care About Neuroethics. Our featured expert will be Judy Illes, Ph.D., Director of the Program in Neuroethics at the Stanford Center for Biomedical Ethics, founding member of the Neuroethics Society, and editor of “An Anthology in 21st Century Neuroethics” published by Oxford University Press.
Please email email@example.com for registration information. Seating is limited for the March 16th Seattle area luncheon. For those who can’t attend, the lecture will be available via podcast.
Who: IHEU -- Appignani Center for Bioethics, Population Communications International and Femmes Afrique Solidarite
What: UN Panel on Health and Empowerment: The Impact of HIV/AIDS and FGM
Where: 777 UN Plaza, New York City
When: Wednesday, Feb. 28, 2007 12:00 PM-1:45 PM
Contact: 212-687-3324 (tel) | 212-661-4188 (fax) | www.iheu.org/bioethics | E-mail: AnaLita@iheu.org
On Wed, Feb. 28, 2007 a panel of bioethicists, physicians and activists will discuss "Health and Empowerment: The impact of HIV/AIDS Epidemic Worldwide and Female Genital Mutilation in African Diaspora Communities" at the United Nations under the auspices of the Division for the Advancement of Women, Commission on the Status of Women.
The panel will discuss the health and empowerment of women, focusing on the international HIV/AIDS epidemic, female genital mutilation (FGM) in
Although the practice of FGM is viewed by many within the international community as a human rights violation, FGM is reportedly still performed on three million women annually. It is estimated that 130 million girls alive today have undergone FGM.
The U.N. has challenged the world to fulfill eight Millennium Development Goals by 2015 that would drastically improve living standards around the world. The panel will address FGM within the context of these goals, FGM's relationship to the HIV-AIDS epidemic and directions for the future.
Wayne R. Cohen, M.D., Ph.D is chairman of Obstetrics and Gynecology at
Adrian Sângeorzan, M.D., a specialist obstetrician and gynecologist and a full-time attending and faculty adviser at
Zeinab Eyega, M.Sc, executive director and founder of Sauti Yetu, an organization seeking to empower women to exercise, advocate and protect their rights based in
Tata Traore, director of intervention for the Bondala Department of the Harlem United Community AIDS Center, a community-based organization providing a unique continuum of care for over 2,300 clients per year. She works to integrate socially and economically disenfranchised people into a healthy and healing community, offering clients access to a full range of medical, social, and supportive services.
Ana Lita, Ph.D., director of the IHEU-Appignani Center for Bioethics in
the recipient of a Soros Foundation Fellowship and a National Association Fellowship for International Scholars.
Michael Castlen, executive director of PCI --Telling Stories, Saving Lives in
The IHEU-Appignani Center for Bioethics focuses on raising awareness of bioethical issues confronting the international. The Center is a new initiative of the International Humanist and Ethical Union (IHEU), an international umbrella organization for humanist, ethical culture, rationalist, secularist and free-thought groups. IHEU holds a special consultative status with the U.N., a general consultative status with UNICEF and the Council of Europe as well as operational relations with UNESCO in
PCI -- Telling Stories, Saving Lives (Population Communications International) is dedicated to the promotion of education and health, including reproductive health and informed choice; sensitivity to national and local cultures; and the principles put forth by the U.N. Millennium Development Goals. PCI develops entertainment-education programs and social marketing strategies that support targeted health and poverty alleviation initiatives. For more than 20 years, PCI has worked in over 27 countries, producing more than 75 radio and television programs, training hundreds of individuals, providing technical assistance to more than 100 international organizations. Central to PCI's long-running Kenyan radio drama Ushiwapo Shikamana was a storyline about the health consequences of female genital mutilation (FGM).
In the fall of 2006, PCI and the IHEU-Appignani Center for Bioethics launched a new program, the Women's Health Center, aimed at supporting grassroots women's health organizations develop their own resources to address the global status of women's health. The Women's
Tuesday, February 20, 2007
Part one of the series predicts numerous advances that will benefit our lives and help us to live longer. Response times will be faster because of car sized VTOL or vertical take off and landing vehicles which are able to fly to and from the hospital in order to avoid traffic congestion. Responding emergency personnel will know all of your vitals, injuries, and medical history immediately. They will even be able to put you into temporarily suspended animation until and while they work on you and hospitals will be able to print you a new organ if necessary.
These advances sound incredible unfortunately, it comes at a price. In order to have all of your vital information immediately, everything you own from your refrigerator to your toilet will be connected to a computer system which not only the heath care system but also your medical insurance company will have access to. Urine and stool samples can be tested and the results supplied to your insurance company with each trip to the bathroom. They will know what is in your cupboards and refrigerator. So they will know what you have been eating and drinking, with particular interest in your not so healthy choices. There will be smart shirts and clothing that can supply private data including your location, heart rate, and breathing.
In this scenario privacy will be a thing of the past and we will all live in fear of our insurance companies. I believe that the best way to avoid this unfortunate consequence of advancement would be to enact some form of legal privacy protection limiting the access of insurance companies to our personal information and the creation of a universal heath care system. After all what would be the point of creating technologies to save countless lives when control of these technologies belongs to insurance companies. Do we all want to be slaves of the insurance companies?
This report contradicts previous advice from two prominent US government agencies: the Environmental Protection Administration (EPA) and the Food and Drug Administration (FDA). In 2004, they released warnings to the public against possible risks of ingesting mercury contained in seafood.
The source of intellect seems to be high levels of omega-3-fatty acids in fish, which also exists in walnuts and flaxseeds. Scientists believe adequate amounts of long-chain fatty acids are essential for children's cognitive development.
The study declares, "the beneficial effects of the nutrients in fish far outweigh the risk." Although the EPA and FDA have been briefed on the study, neither group plans to change guidelines on the basis of one report.
Despite the possibility of mercury toxicity, mothers-to-be who eat three servings of seafood a week greatly assist the cognitive development of their unborn children. The study found no evidence in its research, nor its results supporting the possibilities of mercury toxicity. Since the fish in England generally have a higher methyl-mercury content than the fish in the US, Americans can be confident that the claims of the report are applicable to them as well.
Medline Plus. Fish During Pregnancy Helps Child's Development. Available at: http://www.nlm.nih.gov/medlineplus/news/fullstory_45386.html. Accessed February 20, 2007.
Sunday, February 18, 2007
One large aspect of my job was to wrestle with HIPAA guidelines, specifically making sure that all of the patient records we had were safe. Defining safety in terms of the internet is not easy, as the Bush Administration is now learning. It seems that the GAO has discovered that the Administration plan for a network linking health care providers and insurance companies has no strategy to address security concerns. This is a big woops! It sounds like there is a systematic and uncomprehensive strategy towards privacy and security at HHS.
Speaking from long hours of personal experience and many HIPAA-induced headaches, generating compliant security online is a constantly shifting game of playing catch-up. The technology is constantly changing, and what is cutting edge today will be obsolete security next week. Online medical records, in any sort of centralized system, is going to require not a couple of people doing security, but an entire department of health record security, able to mobilize on a moment's notice to protect those records.
Right now, it sounds like what we have is a far cry from that, and I'd be highly apprehensive of any effort to import my medical records into their currently existing "system".
In this study, caregivers completed questionnaires (n=131) and detailed interviews (n=20). Results from this study demonstrated that 80% of respondents indicated that a cancer diagnosis had a detrimental impact on their sexual relationship with their partner. Both male and female caregivers (86% and 76%, respectively) reported that cancer had affected their sexuality. Caregivers indicated that lack of communication both between the couple and with healthcare providers was a major issue. Failure on the part of healthcare providers to discuss sexuality and intimacy concerns with a couple made it difficult for caregivers to communicate their feelings. According to the study’s lead researcher, Dr Emilee Gilbert, “Part of the willingness to raise the topics of sex and intimacy probably stems from not being given the license to talk about it. Those feelings left them feeling angry, upset, and resentful of healthcare professionals.”1
When healthcare providers did not approach the subject of sexuality and intimacy, caregivers believed they could not mention this subject or voice their concerns. If this sensitive topic was mentioned by healthcare providers, it was only briefly touched on or discussed during an inappropriate time (eg, after the diagnosis of cancer was made). Conversely, when healthcare providers raised the topic of sexuality and intimacy and allocated sufficient time for questions and discussion, caregivers reported an excellent experience.1
* * * * * *
Human sexuality is a complex, multifaceted phenomenon with biologic, psychologic, physiologic, interpersonal, and behavioral components. While sexuality varies by patient and partner(s); age; gender; religious, personal, and cultural values; and life experiences; it is apparent that some type of standardized assessment or discussion should be facilitated by providers.2 “Breezing” over this topic, or omitting it altogether negatively affects patients’ health outcomes, as well as their sexual partners’ lives. Are healthcare providers ignorant or merely negligent when it comes to the sexual health of patients with cancer and their partners? Do they generalize that older patients or those with certain cultural or religious beliefs do not have sex or would be offended if sexuality was mentioned, even in a clinical setting? Does a diagnosis of cancer mean abstinence?
In Gilbert and colleagues’ study, healthcare providers did not discuss sexuality because they felt that it would have been “intrusive” or “disrespectful.” Other factors that may have prevented both provider and patient and caregiver from discussing sex included age, gender, and culture.1 Regardless of the reason, it seems from this study that healthcare providers are holding back because of their emotions or assumptions of their patients and their partners.
Complete healthcare should be just that: evaluating biologic, behavioral, psychologic, and sexual health. For healthcare providers to omit or casually mention sexual health is equivalent to examining only half of the body, taking only one blood pressure reading, or describing only the positive benefits of a respective treatment. Therefore, providers are offering incomplete healthcare. Healthcare providers cannot expect that patients or their caregivers will automatically mention sexual health issues, particularly in the healthcare setting. While some healthcare providers may feel that conversations about sexuality may be taboo in cancer, what about having this same conversation with patients postpartum? Do providers refrain from discussing sexual health and offering guidance to women and their partners after delivery?
A diagnosis of cancer prompts several concerns and questions in the minds of patients and their partners, including prognosis, adverse effects of treatments, ability to work, and participation in activities of daily living. Sexual health might not be an immediate concern, but one that the healthcare provider must discuss and anticipate down the road. While cancer cannot be cured, scientific and medical advancements within the past decade have increased survival, remission rates, and quality of life. Therefore, healthcare providers are now viewing certain forms of cancer not as a “life sentence” but rather a “chronic condition.” When caring for patients with chronic conditions, particularly diabetes, are there not protocols, guidelines, algorithms, regularly scheduled assessments of global health, disseminated education, and health discussions driven by healthcare providers? In men with diabetes, do providers initiate discussions regarding the potential for erectile dysfunction and other sexual issues? Essentially, patients and their caregivers hope for a return to some sense of normalcy, one that entails their lifestyle routines, including sexuality and intimacy.
Sexual dysfunction in the presence of different tumor types is well established and highly prevalent. Across tumor types, prevalence ranges from 40% to 100%. Causes of sexual dysfunction in cancer can been both physiologic and psychologic.2,3 Furthermore, compared with the physiologic side effects of cancer therapies, sexual problems do not tend to resolve within the first few years of disease-free survival. In fact, they remain constant and fairly severe.2 Not only are sexual problems bothersome, they prevent a return to normal posttreatment life.2,4
My recommendation is to treat sexual health as a component of global health; one that is evaluated, discussed, and followed during the long-term. Perhaps it would behoove healthcare practitioners to standardize a sexual health questionnaire for patients and their caregivers to complete. After reviewing their responses, providers could segue into a dialogue about the biologic and behavioral aspects of cancer and cancer treatment and their effects on sexual health. Next, just simply ask the patient and their partner if they have any questions or immediate or long-range concerns about their sexual health. Finally, offer guidance and additional literature, and follow-up with the patient and their caregiver to ascertain if their needs have been met, or if they require referral. This approach has appeared to work for other chronic conditions, why not cancer?
1. Danninger L. Intimacy and sex: the unspoken casualties of cancer. February 17, 2007. Available at: http://www.medicalnewstoday.com/printerfriendlynews.php?newsid=63224. Accessed February 2007.
2. National Cancer Institute. Sexuality and reproductive issues (PDQ®). Health professional version. January 23, 2007. Available at: http://www.cancer.gov/cancertopics/pdq/supportivecare/sexuality/HealthProfessional/page1/print. Accessed February 2007.
3. Derogatis LR, Kourlesis SM. An approach to evaluation of sexual problems in the cancer patient. CA Cancer J Clin. 1981;31:46-50.
4. Bokhour BG, Clark JA, Inui TS, et al. Sexuality after treatment for early prostate cancer: exploring the meanings of "erectile dysfunction". J Gen Intern Med. 2001;16:649-655.
Wednesday, February 14, 2007
Of course, this is blatantly problematic, for the HIPAA violation if nothing else. Abortions are a medical procedure, and thus are covered by the HIPAA privacy laws; you cannot identify who had one on those grounds alone. HIPAA excluded, it's still an invasion of privacy. And on top of all of that, it grants a sort of back-end moral agency to a fetus. A death certificate implicitly requires the ability to die, dying requires status as a human life, not a potential human life.
And this is of course not to knock the view of those who do think a fetus is a moral agent, or a human life worth according all the rights of every human to. But the fact of the matter is, right now our law does not grant those rights to a fetus, and this seems like a very underhanded way to do so.
The obliteration of privacy is certainly the more pressing concern, though - it seems like a tactic designed to strongarm women to either not have abortions, flee to other states, or to unlicensed/unscrupulous abortion providers for an under the table (so to speak) abortion. Do we really want to return to those days? Can anyone see any validity to this law other than the extension of a right to life due to assigning human status to a fetus? (And again, I grant that this is a view many people hold, and realize many people would like abortion to be illegal based on this alone. Am I missing something aside from this?)
Tuesday, February 13, 2007
From Rick Weiss in the Washington Post this morning: AIDS patients suffering from debilitating nerve pain got as much or more relief by smoking marijuana as they would typically get from prescription drugs -- and with fewer side effects -- according to a study conducted under rigorously controlled conditions with government-grown pot.
In a five-day study performed in a specially ventilated hospital ward where patients smoked three marijuana cigarettes a day, more than half the participants tallied significant reductions in pain.
By contrast, less than one-quarter of those who smoked "placebo" pot, which had its primary psychoactive ingredients removed, reported benefits, as measured by subjective pain reports and standardized neurological tests.
The White House belittled the study as "a smoke screen," short on proof of efficacy and flawed because it did not consider the health impacts of inhaling smoke.
But other doctors and advocates of marijuana policy reform said the findings, in today's issue of the journal Neurology, offer powerful evidence that the Drug Enforcement Administration's classification of cannabis as having "no currently accepted medical use" is outdated. To read on, click here.
The study, published in the new issue of the American Sociological Review, found that couples who adopt spend more money on their children and invest more time on such activities as reading to them, eating together and talking with them about their problems.
The researchers examined data from 13,000 households with first-graders in the family. The data was part of a detailed survey called the Early Childhood Longitudinal Study, sponsored by the U.S. Department of Education and other agencies. The entire report can be downloaded here: http://www.asanet.org/galleries/default-file/Feb07ASRAdoption.pdf.
From Reason Online: Who Owns Your Body Parts? ... Alistair Cooke's body lay cold in the embalming room of an East Harlem funeral home, suspended in the brief limbo between death and cremation. A "cutter" soon arrived to make a collection. He sliced open Cooke's legs, sawed the bones from the hip, and took them away. The quintessentially British presenter of Masterpiece Theatre and Alistair Cooke's America—the face of genteel, urbane Albion to millions of Americans—was being carved up for parts. For more on this story, click here.
And an Op-Ed from Michael Crichton in the NY Times: Patenting Life - One-fifth of the genes in your body are privately owned, and the results have been disastrous:
YOU, or someone you love, may die because of a gene patent that should never have been granted in the first place. Sound far-fetched? Unfortunately, it’s only too real.
Gene patents are now used to halt research, prevent medical testing and keep vital information from you and your doctor. Gene patents slow the pace of medical advance on deadly diseases. And they raise costs exorbitantly: a test for breast cancer that could be done for $1,000 now costs $3,000.
Why? Because the holder of the gene patent can charge whatever he wants, and does. Couldn’t somebody make a cheaper test? Sure, but the patent holder blocks any competitor’s test. He owns the gene. Nobody else can test for it. In fact, you can’t even donate your own breast cancer gene to another scientist without permission. The gene may exist in your body, but it’s now private property. Click here to read on.
According to the 2006 Older Women's League (a/k/a OWLs) report on women and long-term care, "about two-thirds of the 80,000 people living in assisted care residences nationwide are women. A touching commentary on Women's E-News points out the growing need to create a network, a community of medical and social programs that truly supports our elderly; that there are millions of seniors, mostly women, who don't need institutional care yet still need assistance.
At a palliative care case conference I attended recently, I found out that it is the eldest daughter who is the one who usually provides the most care (emotional, physical, and financial) for frail and aging parents -- the burden clearly falls upon women and we, as a society, need to step up to the plate and recognize that it is a burden we should all be sharing.
The point does seem to be twofold: one, to regulate hormones, and perhaps slightly more importantly, to regain fertility. (The patient was not married or involved with anyone at the time of her cancer treatment, so could not bank embryos.) This is slightly different from uterine transplants, in that the surgeons are actually talking about things like the toxicity of immunosuppresent drugs on pregnancy. Right now, they're only transplanting the tissue between twins, or people in the Chaney/Lagos sisters, where there will be no immune response due to shared marrow. (This forgoes the need for the immune response suppressing drugs.)
For better or worse, one of the best things about the article is how it's written. It's not sensationalist or over the top. It's not promising a cure for thousands of distraught women, it emphasizes the trial nature of the procedure, talks (albeit briefly) about the issues around transplants and pregnancies, sets limits, and frankly discusses the emotional motivations behind the principle participants.
Kind of a sad commentary on our media when that's novel, eh?
Monday, February 12, 2007
But what about the gay men? Anal cancer is caused by the same strains of HPV that cause cervical cancer, yet we don't see people flocking out to advocate vaccinating boys. Because there is an inherent undercurrent that the boys don't need it, they don't develop HPV-related cancers, only [straight] girls get that.
If we are going to act on the presumption that children will become sexually active when they're older, regardless of the morals their parents try to institute, shouldn't we also avoid the presumption of heterosexuality and vaccinate both genders equally, to confer to both protection?
While the vaccine is currently limited by the FDA to women, why are we not discussing the broader implications and potentials of vaccinating everyone?
I wonder if we'd ever get anything done if we had that sort of restriction on our own (American) election days. It would certainly at least prevent some of the issues we have now, though undoubtedly create others.
[Editor's note: Despite low voter turnout, Portugal's Socialist government said on Monday it would take immediate steps to decriminalise abortion after a referendum in which voters approved the liberalisation of one of Europe's most restrictive laws...
José Sócrates, the prime minister, said new legislation emulating the "best practices" of several European countries would be put before parliament as a matter of urgency. More here.]
Also notable is that Dr. Faust was involved in the aftermath of former Harvard president Lawrence Summers ' comments about women not having an aptitude for science and math. Prior to his resignation, she led committees to balance out the number of women recruited and retained on the campus.
While initially this might not seem like it's big bioethics news, I think it's certainly important news for women. It's another glass ceiling being broken, and as the president of Harvard, Dr. Faust (and oh, I can already see the jokes) is going to be a very important figure in science and the humanities.
Besides, it's just kind of cool.
Wednesday, February 07, 2007
Rent-a-womb in India fuels surrogate motherhood debateDate: Sunday, February 04, 2007
Author: Krittivas Mukherjee
MUMBAI (Reuters) - Jyoti Dave is pregnant, but when the 30-year-old gives birth in March the baby will not be taken home to bond with her other child, but will instead be handed over to an American couple unable to conceive. For her trouble, the Indian surrogate mother will be paid. She won't say how much, but she says it's money she desperately needs to feed her poor family after an industrial accident left the family's only breadwinner unable to work.
"My husband lost his limbs working in the factory," Dave told Reuters. "We could not manage even a meal a day. That is when I decided to rent out my womb." Surrogate motherhood is among the latest in a long list of roles being outsourced to India, where rent-a-womb services are far cheaper than in the West. "In the U.S. a childless couple would have to spend anything up to $50,000," Gautam Allahbadia, a fertility specialist who helped a Singaporean couple obtain a child through an Indian surrogate last year, told Reuters.
"In India, it's done for $10,000-$12,000." Fertility clinics usually charge $2,000-$3,000 for the procedure while a surrogate is paid anything between $3,000 and $6,000, a fortune in a country with an annual per capita income of around $500. But the practice is not without its critics in India with some calling it the "commoditisation of motherhood" and an exploitation of the poor by the rich.
"It's true I'm doing this for money, but is it also not true that a childless couple is benefiting?" said Rituja, a surrogate mother in Mumbai, who declined to give her full name. For the surrogates -- usually lower middleclass housewives -- money is the primary motivator.
Aside from the lesson that, well, maybe we’ll have less fun gambling when we’re PMS-y, this study importantly demonstrates measurable distinctions in brain blood flow with changing hormone levels in the body. How such information may be interpreted or used in women’s health or broader social assumptions remains to be seen. Thoughts? Predictions?
Gregoire thought that it was premature to make the vaccination mandatory, which doesn't rule out that she will make it so in the future. The cost to the state is a bit unknown, since its being lumped under the reported budget for the next two years along with a rotavirus vaccine; the two together will cost about $26 million for 2.5 years.
Sunday, February 04, 2007
Janet Jenkins and Lisa Miller got hitched and had a baby together. Vermont says that's a simple truth. The lower courts of Virginia said it was all null and void, but the Virginia Court of Appeals recently recognized that the Vermont courts held jurisdiction in this matter. The case may very well end up in the United States Supreme Court as a comity or conflict of laws dispute, but in the meanwhile, the future of a little girl hangs in the balance.
To read the whole article, click here.
CONNIE ARAPS, 57, of Delray Beach, Fla., thought that her father, Tom Araps, 87, was managing just fine on his own. But when he came to stay with her for a few months in 2005, she found that he was skipping meals, sleeping all morning and not taking daily walks.
To satisfy her father’s desire to live alone, but to ease her mind about his safety, Ms. Araps found an apartment for him less than a mile from her home and had it equipped with QuietCare, a home health alarm system provided by ADT Security Services.
She drops by his apartment often, and logs into a Web site several times a day to check on him. Motion sensors track how often Mr. Araps opens the refrigerator, when he gets out of bed and how long he stays in the bathroom. If his normal patterns vary, the alarm company alerts her.
One day, the company called her to say that no one had entered or left the apartment all day. It turned out that a home health aide had failed to show up, and her father had not received his diabetes medication. Ms. Araps rushed over and made sure that her father took his pills.
To read on, click here.
Saturday, February 03, 2007
Say you’re a woman who wants to have fertility treatment but can’t afford the $5,000 to $6,000 cost.In Britian, women may get a chance to participate in this type of program, and doctors and ethicists are weighing in on both sides of the debate over whether or not there should be financial compensation for supplying eggs.
What if you could get it for half-price, by agreeing to donate half the eggs you produce for stem cell research?
Some believe that egg donors should be treated and compensated in the same way as any other medical research participant.
From Dr. Alison Murdoch of Newcastle University, who has proposed the idea of an "egg rebate":
Murdoch says that as long as women provide informed consent, she believes that egg-sharing is no different from standard medical practices, such as giving blood or participating in drug trials.
Others say that it will exploit poor, disadvantaged women:
If stem cell researchers offer the kind of money that fertility clinics do, “I think any woman who’s trying to pay the rent and put food on the table, and people who don’t have a lot of money to spare, are going to be tempted to discount the risks and overvalue the benefits,” [Marcy Darnovsky] said.
Similarly, ethicist Laurie Zoloth of Northwestern University believes that paying compensation could exploit some women. Women who give eggs to fertility clinics are doing it for the money, she said, and as a society, “we don’t ... want the bodies of the poor used for the needs of the wealthy.”
“I think it smacks of offering financial inducement to women to donate eggs specifically for research,” said Dr. Stephen Minger, director of the stem cell biology laboratory at King’s College in London. “You will be exploiting women for money,” said Minger, who says that participants would be convinced to undergo the treatments for financial gain.
Hudson agreed, saying it would appeal to women of limited means who are “desperately trying to get pregnant” and offers the possibility of a baby in return for eggs. “How is that not undue influence?” she asked.
Art Caplan weighed in as well, MSNBC:
Giving rebates for eggs smacks of commercializing reproduction. On its face it is not quite as bad as instituting a market but it still feels ethically queasy. Who really wants their mother, sister or daughter to have to give away half their eggs and reduce their own chance of having a baby in order to gain access to infertility treatment? Worse still, who really wants their sister or daughter working their way through college as an egg seller?
It is one thing to argue that we should be using spare or unwanted embryos that already exist for research since they will be destroyed anyway. But making eggs for money is a different matter. The market in eggs tries to incentivize women to do something they otherwise would not do.
Read the rest of the article here.
Friday, February 02, 2007
Bypassing the Legislature altogether, Republican Gov. Rick Perry issued an order Friday making Texas the first state to require that schoolgirls get vaccinated against the sexually transmitted virus that causes cervical cancer.
Perry also directed state health authorities to make the vaccine available free to girls 9 to 18 who are uninsured or whose insurance does not cover vaccines. In addition, he ordered that Medicaid offer Gardasil to women ages 19 to 21.
Beginning in September 2008, girls entering the sixth grade — meaning, generally, girls ages 11 and 12 — will have to receive Gardasil, Merck & Co.’s new vaccine against strains of the human papillomavirus, or HPV.
And for those of you wondering how Gov. Perry has the authority to issue such an order:
By employing an executive order, Perry sidestepped opposition in the Legislature from conservatives and parents’ rights groups...
The order is effective until Perry or a successor changes it, and the Legislature has no authority to repeal it, said Perry spokeswoman Krista Moody. Moody said the Texas Constitution permits the governor, as head of the executive branch, to order other members of the executive branch to adopt rules like this one.It'll be interesting to see how this plays out in the media, with the public, and I'm sure, eventually a courtroom. Bravo to Gov. Perry for taking the lead on this issue.
See previous WBP posts here.
Human Rights for the 21st Century:
Rights of the Person to Technological Self-Determination
May 11-13, 2007
Keynote speaker: Jonathan D. Moreno
Ph.D., Senior Fellow at the Center for American Progress
Professor of Medical Ethics, History and Sociology of Science at the
. Universityof Pennsylvania
Location: Consulate General of
Location: 777 UN Plaza, 2nd Floor,
New York City
Many thanks to the Consulate General of Romania in NYC which offered the unusually delightful venue for our reception.The 2007 conference “Human Rights for the 21st Century: Rights of the Person to Technological Self-Determination” will focus on (a) human rights in the context of bodily autonomy as well as reproductive and cognitive liberties, (b) emerging biotechnologies which may contribute to the exercise of such rights, and (c) challenges to the ideas of human identity underlying some human rights discourse.
The conference will address the role of emerging technologies and scientific progress in today's society, as well as their implications for humanists and bioethics. Potential topics to be considered include nanotechnology in medical treatment, novel vaccines against addictive behaviors, internet-enabled social networking and engineering, designer genetic engineering, novel transplantable tissue and organ generation, neuroscience, as well as emerging technologies and women’s rights.
Phone: (212) 687 3324 firstname.lastname@example.org
The newly elected Democratic majority on Capitol Hill is pushing for legislation that will overrule President George W. Bush’s strict control over stem cell research funding. The Stem Cell Research Enhancement Act looks to allow federal funding for stem cell research on embryos donated by in vitro fertilization clinics. It does not attempt to allow research on embryos created solely for research. Last summer Democrats and a minority of Republicans in Congress passed such a bill only to be vetoed by the President. They could not meet the necessary two-thirds vote in the House and Senate to override the veto, and the bill died.
Things look different this time around. The Democrats now hold a 233-202 advantage in the House and a 51-49 advantage in the Senate. Michael Werner and Jonathan Moreno at the Center for American Progress predict that the reintroduced stem cell legislation would be likely to gain 66 votes in the Senate, missing the two-thirds vote by just one vote. The House will be the bigger problem now that many pro- stem cell research Republicans have lost their seats and the newly elected Democrats have yet to offer positions on the topic. Major campaigning will begin by both sides in efforts to sway public opinion, put pressure on House members, and ultimately control this two-thirds majority.
The anti stem cell side will frame the issue in a moral light, arguing that scientists are playing god and killing innocent life. They will bombard the public with the notion that they do not want to be involved in this crossing of ethical boundaries by supporting such acts of atrocities with their tax dollars. The pro-stem cell side will push the message that this research offers hope to millions of Americans. Celebrity commercials, such as the ones with Michael J. Fox, will push that stem cell research provides hope for new cures and social progress. They will ask the public if they would support research that could help a family member with Parkinson’s of Alzheimer’s thus hitting home and making it difficult to refuse such support.
The public knows very little about the science involved in stem cell research. Both sides know that the public will make their decisions based on the frame through which they see the issue, either stem cells lead to new cures or stem cell research is morally wrong, and both are putting massive amounts of pressure on the public. The pro-stem cell side needs to be careful not to go too far in the promises, not to offer false hope, and not to lose public trust. The anti-stem cell side needs to realize that for the first time the Evangelicals, who in the past have been secure in their decision that stem cell research is immoral, and the only group to not offer any support for the research, have now increased their support. Public trust is at risk in this debate. Read more
Thanks to the innovative vision of the Alden March Bioethics Institute (Albany, NY), directed by Dr. Glenn McGee, we can all get top notch training. The new online program is outside the usual academic box with its use of podcasts, real-time internet resources (live chat with professors), and access to some of the best minds in bioethics (I’m not the only person who has pined for a class with Bonnie Steinbock - one of the world's leading scholars in reproductive ethics.)
Read here for more details:
AMBI's online programs will easily integrate into your busy schedule because we use the latest educational technologies. Working alongside our partner Apple, Inc., we've adopted iTunes University, which will give you supplementary materials alongside what you read. Unlike other graduate programs in bioethics, we provide thousands of hours of this material, ranging from case studies to weekly updates on bioethics to a direct link to The American Journal of Bioethics, the world's leading bioethics journal, edited at AMBI, where you will have special access to discussions about the key issues in bioethics.Dr. McGee, pioneer in bioethics blogging, has hit another home run. Beam me up.
Maybe a better way to say it is this: in the classroom, you can take notes and tape lectures from 30 yards away and talk with your colleagues - during the time you spend away from home and work. In our classes, you can watch the lectures (which are cut into manageable segments and filmed brilliantly by a veteran producer from NPR), and then hit rewind, and you can discuss matters of importance with faculty any time you want by online discussion board, and come to the faculty office to visit the professor, even if you live in China, without leaving your computer through the nation's only bioethics Online Office Hours, with live discussion one on one.
And because iTunes University uses Apple's iTunes, it works on any computer. Your free iPod, included with your enrollment, is a constantly updated fountain, from which flows debate, discussion, film, cases, even your own contributions (in some classes) to a Wikipedia (encyclopedia) about the issues you study. And it is all very to use. It is more trouble to go to a bookstore than to learn to use iTunes. All we ask is that you not fill the remaining space on your iPod with songs by Barry Manilow!
Like all men on this African isle, Carvadju Jose Nananghe knew exactly what it meant. Refusing was not an option. His heart pounding, he lifted the steaming fish to his lips, agreeing in one bite to marry the girl.
"I had no feelings for her," said Nananghe, now 65. "Then when I ate this meal, it was like lightning. I wanted only her."
In this archipelago of 50 islands of pale blue water off the western rim of Africa, it's women, not men, who choose. They make their proposals public by offering their grooms-to-be a dish of distinctively prepared fish, marinated in red palm oil.
It's the equivalent of a man bending on one knee and offering a woman a diamond ring, except that in one of the world's matriarchal cultures, it's women who do the asking, and once they have, men are powerless to say no.
To have refused, explained the old man remembering the day half a century ago, would have dishonored his family -- and in any case, why would he want to choose his own wife?
"Love comes first into the heart of the woman," explained Nananghe. "Once it's in the woman, only then can it jump into the man."To read on, click here.
Thursday, February 01, 2007
Blog reader Leslie Feldman emailed the following interview with Dolores Malaspina, MD, MSPH, professor of psychiatry at Columbia University College of Physicians and Surgeons, and director of the Medical Genetics Division of Clinical Neurobiology at New York State Psychiatric Institute in New York City (try to get all that on a business card.) Here is a snippet:
What is the most irrefutable finding that you and your colleagues have made?The most irrefutable finding is our demonstration that a father’s age is a major risk factor for schizophrenia. We were the first group to show that schizophrenia is linearly related to paternal age and that the risk is tripled for the offspring of the oldest groups of fathers. This finding has been born out in every single cohort study that has looked at paternal age and the risk for schizophrenia.
And this interview with Michael Craig Miller, MD, Harvard Medical School:
Should Older Men Stop Fathering Babies?
It's true that medical technology and general improvements in health have made life much more enjoyable for people in middle to late life. Maybe 50 is the new 30 when it comes to some aspects of aging. But a healthy and active lifestyle does not make 50-year-old sperm the new 30-year-old sperm. The increased risk of passing on any genetic vulnerability to a child is significant when you are older. When it comes to autism, however, the numbers are sobering. A man younger than 30 has no more than a 1 in 1,000 chance of fathering a child with autism. But the risk bumps up to approximately 3 in 1,000 for a man in his 40s and 5 in 1,000 above age 50. If a father in his fifties has a son, the risk of autism may approach 1 in 100.
And this abstract:
Parental Age, Family Size, and Risk of Multiple Sclerosis.
Background: Family structure, such as having siblings, provides proxy measures for a variety of characteristics relevant to disease risk. The etiology of multiple sclerosis (MS) is not well defined and analysis of family structure may provide etiologic clues. We conducted a case-control study to examine possible associations.
Results: Having 3 or more younger siblings, compared with none, produced an adjusted odds ratio (OR) for MS (with 95% confidence interval) of 0.80 (0.70-0.92) (adjusting for number of siblings, twins, maternal and paternal age, parental MS, sex, father's social class, county and year of birth). With 3 or more older siblings, the adjusted OR was 0.83 (0.72-0.96). Different-sex twin pairs compared with singletons had an OR of 0.59 (0.37-0.95) for MS. The risk of MS increased steadily with father's age but not mother's age, up to 2.00 (1.35-2.96) for 51- to 55-year-old fathers (compared with 21- to 25-year-old fathers).
Makes you wonder why the question of older fathers doesn't get more attention in the media.
--Fathers are granted paid paternity leave or paid parental leave in 65 countries, including 31 offering at least 14 weeks of paid leave. The U.S. guarantees fathers no such paid leaves.
--At least 107 countries protect working women's right to breast-feed; the breaks are paid in at least 73 of them. The U.S. does not have federal legislation guaranteeing the right to breast-feed at work.
--At least 145 countries provide paid sick days, with 127 providing a week or more annually. The U.S. provides unpaid leave through the Family and Medical Leave Act, which does not cover all workers; there is no federal law providing for paid sick days.
--At least 134 countries have laws setting the maximum length of the work week. The U.S. does not have a maximum work week length or a limit on mandatory overtime per week.
To read on, click here...
Interestingly enough, this could very well be an area of agreement for pro-choice and pro-life (terms which I really am not terribly fond of, since they belie the complexity of the issues) advocates -- no woman should feel that she has to choose between her job and a pregnancy.
Should parents have the right o choose their baby's gender? How about its sexual preference? Intelligence? Physical appearance? And are these left/right questions?
Futurists see a conflict forming over our dominion over the human body, and over the choices we make about our biological future - and that of our children. Some call it a clash between "bioliberals" and "bioconservatives," and frame it as a debate over individual rights.
Prairie Lights Books, an iconic Iowa City bookstore, closed early Tuesday evening after receiving a threat about a book about abortion that was to be the subject of that evening's "Live from Prairie Lights."
Krista Jacob, who edited the book Abortion Under Attack: Women on the Challenges Facing Choice had planned to read at 7 p.m., but the store had closed by 6 p.m. because of possible safety issues.
"I was really surprised, because I always have protesters at my events, but my events always happen," Jacob said Tuesday night, unwinding over a meal at Masala, 9 S. Dubuque St. "I just really would have liked the opportunity to talk about my book."
Lauri Wollner, one of the book's contributing writers and a former antiabortion activist, agreed.
"It's scary that 'pro-life' people are threatening lives," she said.
After the bookstore closed, several protesters gathered outside, toting signs in support of Jacob and free speech. To read on, click here.