Monday, October 16, 2006

Calling all Bioethics Bloggers


Are you a bioethics blogger and attending the American Society for Bioethics and Humanities annual meeting next week in Denver? We are planning a special bloggers meeting to discuss, well, blogging and bioethics. Not sure of the time nor venue yet but we'll opt for an open slot in the conference schedule (and hopefully we'll scrounge up some pizza and beer.) Interested in participating? Please contact me for further details.

Friday, October 13, 2006

The Scientist & the Ethicists Podcast Series: Nerd Girrrrls Rule!


In an effort to help the public make sense of an escalating number of news stories about “designer babies,” genetic engineering and cloning, the Women’s Bioethics Project launchs it's first series of podcasts, titled “The Scientist & the Ethicists.” Check it out.

Thursday, October 12, 2006

The Breastfeeding Rodeo

The U.S. Department of Health and Human Services and the Office on Women’s Health have been actively promoting an ad campaign over the past few years to increase awareness about the benefits of breastfeeding.

http://www.womenshealth.gov/breastfeeding/index.cfm?page=adcouncil

Educating women about the benefits of breastfeeding—getting that information out there (because many were unaware)—is an extremely important endeavor and the DHHS and OWH should be commended for their efforts…for the most part.

Their print and radio ads are generally informative and amusing and (I feel) effective in that they provide important scientific information about the benefits of breastfeeding without criticizing the actions or choices of mothers.

Their TV spots, however, have generated some controversy. Each depicts pregnant women (fictionally) engaging in a dangerous activity, including log rolling and riding a mechanical bull, then equates the activity with failing to breastfeed your child.

This approach seems counterproductive on at least two fronts: 1) it falsely implies that feeding your baby formula is as dangerous to its health as bull-riding while pregnant and thus feeds misinformation to its audience and 2) it serves to criticize and alienate women who choose not to or cannot breastfeed for a variety of reasons.

Let’s give women the best information we have on breastfeeding and on other women’s health topics to help them make the best decisions for their families. Frightening them with false analogies is both unethical and counterproductive.

Lastly, if the U.S. government is truly interested in breastfeeding for our children and for public health, they need to encourage our workplaces and the general public to support breastfeeding and to provide women with comfortable places to nurse their children. Many moms I know (myself included) have plenty stories to share about breastfeeding or pumping while sitting on the toilet in a workplace or public bathroom, or stories about being heckled for discreetly breastfeeding in public.

Currently, the womenshealth.gov website information appears to address workplace breastfeeding solely by encouraging women to make it work. They say:

“Let your employer and/or human resources manager know that you plan to continue breastfeeding once you return to work. Before you return to work, or even before you have your baby, start talking with your employer about breastfeeding. Don't be afraid to request a clean and private area where you can pump your milk. If you don't have your own office space, you can ask to use a supervisor's office during certain times. Or you can ask to have a clean, clutter free corner of a storage room.”

Thanks for the tips, but I want to know: do DHHS and OWH have a plan to educate our workplaces or maybe that man on the airplane who was so “disgusted” by my breastfeeding that he asked to change seats?

Emergency Contraception for those under 18

Student blogger Kirti Shah comments on a previous post re emergency contraception:

Recently the Government of Chile announced that they are going to provide emergency contraception to any one over 14 at no cost. What a revolutionary idea from a Catholic country. We in the U.S. now have made it available over the counter to anyone over 18 but they still have to pay. This was blocked on political grounds ( religious grounds) a number of times by questioning its safety ( rejecting all the evidence) and the usual abortion arguments.

The current law permits the pharmacist to sell it to anyone over 18. Any person over 18 can then give it to a person under 18 but a pharmacist cannot. This makes the pharmacist a policeman and potentially liable in case of some kind of a mistake. This can potentially introduce a third party in the distribution chain. We need to change this law to accommodate any minor and this would at the very least allow a health professional to advise the patient on the proper use of this medication.. The “ morning after” pill has a 89% efficacy if taken within 72 hours of unprotected sex and is more effective if taken in the first 24 hours. Reducing the waiting time should be of utmost importance.

We should clarify what emergency contraception is. It is a backup method of preventing pregnancy or reducing chances of pregnancy after unprotected sex. Examples of unprotected sex would be a broken condom, if one forgot to take birth control pill for 2 or more days ( which happens a lot) , or if one was sexually assaulted. Plan B is not RU-486 ( the abortion pill) because plan B is used to prevent pregnancy. It will not work if you are already pregnant and it will not affect an existing pregnancy. Plan B is also safe and it is a larger dose of normal birth control pill. Plan B will decrease the chances of pregnancy by 89% if taken within the first 72 hours of unprotected sex. It works better if taken within the first 24 hours after unprotected sex. When birth control pills first came out their doses were very high almost similar to plan B.

Arguments have been and will be used against plan B with misleading and false arguments and a conscious effort has to be made to educate the public. Condoms were once sold behind the counter and today they are available all over and serve a useful purpose. We cannot deny services to people who need it using false arguments and we need to loosen up the law that will free up the pharmacist or any other health care professional to be able to provide these services in good faith.

Tuesday, October 10, 2006

Vaccines on Trial

[Guest post by Amrita Desai]

I came across a very interesting article on One of the largest ever vaccine studies which is underway in Kolkata, India. Paroma Basu, who is a freelance writer based in Madison, Wisconsin, uncovers the benefits and difficulties of inoculating 60,000 people against cholera and typhoid fever out of population of 14 million. In the poorest areas of this city, residents live in homes jammed together along winding sewage-littered pathways and rely on shared toilets and drinking water. Typhoid fever and cholera are endemic in India, and are chronic problems in Kolkata. This state of West Bengal is often called as “homeland of cholera”.

The vaccine industry has always been reluctant to commit resources to the development of vaccine for world’s poorest people. But a grant of US$40 million from Bill & Melinda Gates Foundation is helping to introduce affordable vaccines to cities like Kolkata. The money has funded the five-year Diseases of the Most Impoverished Program (DOMI). DOMI is studying the social, economic, and clinical effects of introducing vaccines. Since 2000 it has launched two cholera studies, six projects investigating typhoid fever.

In a unique research effort 60,000 Kolkata slum-dwellers will participate this summer in phase III trials of an oral cholera vaccine. Last November researchers injected the same population with vaccine against typhoid fever. Typhoid vaccine was donated by GlaxoSmithKline and cholera vaccine by Dukoral.

The road blocks encountered during this trial in Kolkata are an example of the difficulties of caring out such a program from political and religious tensions and burocratic delays to mistruths spreading like wild fire among the largely illiterate trial participants. The institute had to get an endless list of clearances from National health ministry committee, local councilors, ethics and human right groups, Hindu priests, Muslim imams and community thugs. During the typhoid vaccine trials rumors were spreads that the scientists were injecting cancer cells in to people. Others believed that they were being sterilized. There was mass panic.

About 65% of the targeted study group eventually gave their consent and receive the typhoid jab. A big reason for this level of success was Dipika Sur, director of epidemiology who employed 250 slums, dwellers as community health workers, field supervisors and sample collectors. The strategy paid of largely because of staggeringly high unemployment levels in the slums. Today a health worker goes door to door sending patients with persistent symptoms of diarrhea or fever to one of seven “health outpost”, where patients received free blood test and medicines if diagnosed with cholera or typhoid. Here people can see a doctor and be treated right away. Families who share a room with 11 members are aware how important it is to keep the bathroom clean and not to drink polluted water.

India is becoming an increasingly appealing location for undertaking clinical trials. A trial in India costs half as much as in the United States, and India has a high prevalence of diseases, such as diabetes and heart disease, that predominantly affect the developed world. But India's future as a centre for 'outsourced' clinical trials could be in jeopardy. Despite its advanced hospitals, the country is struggling to find enough trained staff to run the clinical trials and lacks a central database to track them once they are underway. There are several recent cases where researchers did not comply with ethics regulations. Trial participants were, without their knowledge, given drugs that had not been approved by the health ministry or been tested adequately in animals.
If the government fulfils its promise to tighten regulations, India could benefit greatly not just from the revenue generated by these trials, but also from the new drugs being tested in its population. At least 2 million persons succumb annually to enteric infection, and in countless other patients, diarrhea disease aggravates malnutrition and susceptibility to other infections. Prevention of enteric illness by virtue of improved hygiene and provision of sanitation and water treatment is impractical in most developing countries, where morbidity and mortality rates are highest. For this reason my opinion is that development of vaccines against the most important gastrointestinal infections remains a high priority.

The biotech companies from whole world should unite and help each other by eliminating the spread of deadly diseases and bring awareness among people and live life in a clean environment.

Friday, October 06, 2006

Marijuana may stave off Alzheimer's

Another news item in the category of "needs rigorous clinical trials"~ From Reuters this morning:

Good news for aging hippies: smoking pot may stave off Alzheimer's disease.

New research shows that the active ingredient in marijuana may prevent the progression of the disease by preserving levels of an important neurotransmitter that allows the brain to function.

Researchers at the Scripps Research Institute in California found that marijuana's active ingredient, delta-9-tetrahydrocannabinol, or THC, can prevent the neurotransmitter acetylcholine from breaking down more effectively than commercially marketed drugs.

THC is also more effective at blocking clumps of protein that can inhibit memory and cognition in Alzheimer's patients, the researchers reported in the journal Molecular Pharmaceutics.

The researchers said their discovery could lead to more effective drug treatment for Alzheimer's, the leading cause of dementia among the elderly. To read on, click here.

Photo: (AFP/Getty Images/Ron Wurzer)



Thursday, October 05, 2006

The Feminization of Medicine


[Hat tip, Sean Philpott] From the Boston Globe, an article about the changing face and character of medicine:

Over the last quarter-century, women have entered the field of medicine in unprecedented numbers, changing not only its face but its character...

Nearly half of medical school students nationwide are now female, and as they enter the profession, they are making patient care friendlier and therefore may be less likely to get sued than male physicians. Women physicians also are more likely to serve minority, urban, and poor populations and are twice as likely to go into primary care....The implications for the physician workforce are significant. .. To read on, click here.

(Boston University Alumni Medical Library photo)

Tuesday, October 03, 2006

Organ "Donations" from Chinese Prisoners

The darker side of bioethics. This video is heart-retching and could not argue louder for a Universal Declaration on Bioethics and Human Rights. Watch it and weep.


http://www.youtube.com/watch?v=TklqtWzNn_A

From the BBC:
Organ sales 'thriving' in China

Chinese officials say the prisoners volunteer to donate their organs. The sale of organs taken from executed prisoners appears to be thriving in China, an undercover investigation by the BBC has found. Organs from death row inmates are sold to foreigners who need transplants. One hospital said it could provide a liver at a cost of £50,000 ($94,400), with the chief surgeon confirming an executed prisoner could be the donor. China's health ministry did not deny the practice, but said it was reviewing the system and regulations.

'Present to society'

The BBC's Rupert Wingfield-Hayes visited No 1 Central Hospital in Tianjin, ostensibly seeking a liver for his sick father. Officials there told him that a matching liver could be available in three weeks.

Thanks to bioethics.net for bringing this to our attention.

Monday, October 02, 2006

Google Results for Bioethics Penis: 79,700

Now for the lighter side of bioethics:

I spent much of the day working on optimizing the Women’s Bioethics Project blog and website to increase our readership. (Yes, the glamorous life of running a public policy think-tank.) My husband, who is a software engineer, suggested that rather than the tedious process of linking to appropriate websites or writing content that will be picked up by widely read newsgroups, I should just add “penis” to my keyword list and be done with it.

Rather than indulge in such a gratuitous attempt to increase our Google ranking, I did some crack research so I could offer two recent postings from the prestigious American Journal of Bioethics and the venerable Hastings Center on the topic:

Penis Transplants in China
http://blog.bioethics.net/2006/09/insert-penis-here.html

Proof that I Like Penises
http://www.bioethicsforum.org/20060310adreger.asp

I think that about covers (or uncovers it.) Back to neuro-ethics.

Call for Papers: Women's Health Conference

The Pennsylvania Hospital, Philadelphia, will host its second annual
History of Women's Health Conference on Wednesday, April 11, 2007. We invite interested persons to send a two page proposal or abstract of your topic by Wednesday, November 15, 2006 for consideration. The History of Women's Health Conference focuses on women's health issues from the late 18th century to the present. This conference encourages interdisciplinary work. Topics of interest include, but are not limited to, obstetric and gynecology issues (fertility, infertility, birth control methods, menopause), adolescence (health, cultural influences, body image), mental health topics, geriatric concerns, overall women's health, access to health care, minority health and more.

Please submit your proposals/abstracts to:

Stacey C Peeples
Lead Archivist, Pennsylvania Hospital
3 Pine East, 800 Spruce St.
Philadelphia, PA 19107
(215) 829-5434 (v)
(215) 829-7155 (f)

Where the Rubber Meets Roe

William Saletan argues that the abortion debate is morphing: Either you're for reducing the numbers or not:

The issue that never changes is finally changing.

If you're one of the millions of Americans who don't like abortion but also don't like the idea of banning it, good news is on the way. In the last three weeks, two bills have been filed in the House of Representatives. Without banning a single procedure, they aim to significantly lower the rate of abortions performed in this country. Voluntary reduction, not criminalization or moral silence, is the new approach.

How do you stop abortions without restricting them? One way is to persuade women to complete their pregnancies instead of terminating them. The other is to prevent unintended pregnancies in the first place. And there's the rub—or, in this case, the rubber. The two House bills used to be one proposal, backed by an alliance of pro-life lawmakers and organizations. The alliance split because one faction wanted to fund contraception and the other didn't. Read on.

The Value of Life: War vs Embryos

[Hat tip to Josh Perry for this alert] Scathing Slate article on Bush's faulty reasoning on embryonic stem cell research by Michael Kinsley:

It was, I believe, Rep. Barney Frank, Democrat of Massachusetts, who first made the excellent, bitter, and terribly unfair joke about Ronald Reagan: that he believed in a right to life that begins at conception and ends at birth. This joke has been adapted for use against various Republican politicians ever since. In the case of President George W. Bush, though, it appears to be literally true.

Bush, as we know, believes deeply and earnestly that human life begins at conception. Even tiny embryos composed of half a dozen microscopic cells, he thinks, have the same right to life as you and I. That is why he cannot bring himself to allow federal funding for new stem-cell research, or even for other projects in labs where stem-cell research is going on. Even though these embryos are obtained from fertility clinics where they would otherwise be destroyed anyway, and even though he appears to have no objection to the fertility clinics themselves, where these same embryos are manufactured and destroyed by the thousands, the much smaller number of embryos needed and destroyed in the process of developing cures for diseases like Parkinson's are, in effect, tiny little children whose use in this way constitutes killing a human being and therefore is intolerable.

But President Bush does not believe that the deaths of all little children as a result of U.S. policy are, in effect, murder. He thinks that some are, while very unfortunate, also inevitable and essential.

You know who I mean. Close to 50,000 Iraqi civilians have died so far as a direct result of our invasion and occupation of their country, in order to liberate them. The numbers are actually increasing as the country slides into chaos: more than 6,500 in July and August alone. These numbers are from reliable sources and are not seriously contested. They include many who were tortured and then killed, along with others blown up less personally by car bombs and suicide bombers. The number does not include the hundreds of thousands who have died prematurely as a result of a decade and a half of war and embargos imposed on the Iraqi economy. Nor does it include soldiers on both sides, most of whom are innocent, too. Last week the number of American soldiers killed in Iraq and Afghanistan surpassed the number of people who died in the terrorist attacks of Sept. 11, 2001.

To read on, click here.

Thursday, September 28, 2006

Top Ten Places for Moms to Work

Our friend and fellow blogger, Chris MacDonald, has done a post on the Top Ten Places for Moms to Work -- check it out!

Thanks, Chris!

A Career In Business Isn't For Every Gender...

From my favorite satirical website, The Onion:

I've been in this field a long time. I've seen what it can do to someone who's not thick-skinned enough to bear the slings and arrows, and believe me, it's not pretty. The business world can be a cold and unforgiving place, and to make it here, you've got to be one tough cookie. It may sound harsh, but the truth is, not every gender's cut out for this line of work.

Day in and day out I watch young people with nothing more than a graduate degree and a few years of experience try to break into upper management, and almost exactly half of them find out they don't have the correct reproductive organs to hack it. They might bitch and whine and initiate litigation, but folks, them's the breaks.

Here's the long and short of it: Some people have the proper chromosomal pairing to seal the deals, and some people just plain don't.

I'm talking about survival of the fittest here, and the truth is, nobody gets a free lunch, especially when it comes to equal opportunity in hiring practices. Sure it'd be great if we were all blessed with the genitalia it takes to succeed in business, but the real world doesn't work like that. We can't fill America's boardrooms with people and genders unfit to be there just because we don't want to hurt their feelings.

What kind of society would we be living in if we gave everybody a chance, regardless of whether or not they had the right hormonal levels to get the job done? To read the rest of article, click here.


Tuesday, September 26, 2006

The Male Brain (of Mice and Men)


We recently wrote about how neuroscience is a burgeoning field; some say that it will displace genetics as the leading edge of scientific discoveries in the 21st century. Significant ethical issues come along with discoveries about how our brains work.

Fortunately, thanks to the vision and generosity of Paul Allen, scientific researchers will now have the tools they need to unlock the brain's mysteries. From today's Seattle Times:
The type of brain map that used to grace high-school biology texts looked like a quilt: A pink chunk labeled "vision" bumped up against a blue blob that was the seat of language and a yellow swath representing motor perception.

Those crude representations were the result of centuries' worth of painstaking dissection, coupled with case studies of people suffering from brain damage and disease.

It took only three years for a Seattle lab founded by Microsoft mogul and philanthropist Paul Allen to revolutionize the landscape of neuroscience by creating a map of the brain that goes far beyond topography to pinpoint the workings of individual cells.

Allen, who donated $100 million to the lab, said he is so pleased with the results that he will consider similar, large-scale science projects in the future.

"This was a great opportunity to do something here that made a difference, and that we could do quickly," he said. "We'll certainly look for more opportunities like this."

Experts say the Allen Brain Atlas, which will be formally unveiled today, will boost understanding of brain circuits and chemistry — and what goes wrong in conditions ranging from schizophrenia and autism to Parkinson's disease and drug addiction.

The initial mapping will be done on male mice. While we applaud their efforts, it is important not to assume discoveries based on male models (mice or men) can be directly translated to the female gender.

We found this out with heart disease. Paul: Remember the ladies!

Monday, September 25, 2006

Sex and the Single Brain


I'm not sure if this book that the Washington Post reports on is really a thoughtful discourse or just adding fuel to the gender stereotype fires -- the article in the Post suggests the latter:

According to pop psychiatrist Louann Brizendine, author of the best-selling new book "The Female Brain," men and women come equipped with completely different operating systems -- not only below the belt but between the ears.

Like bath towels, there are his-and-her brains -- that there is no such thing as 'unisex brain.'

Brizendine insists this is a scientific fact. Males and females may perform similar calculations, but they use different "circuits." Woman is Mac. Man is PC. Blame the brain.

For Brizendine, it's all about the hormones --"The female brain is so affected by hormones, they control her very perception of reality," says the doctor. "Her values, her desires, what's important to her, even whom she loves." For him, brain awash in testosterone, it's all about sex and aggression...

But some of her critics say that what Brizendine did was overstate the science. In part, it may be the style that Brizendine adopts when she speaks and writes. When science looks for differences, it finds them in the average male and average female -- meaning that if six in 10 women show an advantage in one area, so do four in 10 men. But this gets lost
in the prose.

n a 2001 National Academy of Sciences report, the authors write: "Sex matters. Sex, that is, being male or female, is an important basic human variable that should be considered when designing and analyzing studies in all areas and at all levels of biomedical and health-related research."

I'd like to get Martha Farah's or Judy Illes's take on this supposed scientific research, two women who have been among the founders of The Neuroethics Society, a brand new interdisciplinary group of scholars, scientists and clinicians who share an interest in the social, legal, ethical and policy implications of advances in neuroscience.

Friday, September 22, 2006

Pet Cloning


Should we worry about pet cloning? I was asked that question the other day by a woman who had just heard about CC the cloned cat and the Genetic Savings and Clone company. And while it might seem like a trivial, sideshow kind of issue, a quick internet search revealed that they follow a set of internally developed bioethical code of conduct. I was impressed - wish all biotech companies had such transparent guidelines.

Whether you support pet cloning or not, I think her question reveals the core anxiety we all feel about emerging technologies: Could we? Would we? Should we? And why it is so important to always ask the bigger question of "what kind of a world do we want to live in."

Wednesday, September 20, 2006

Stem Cell Wars


I just read a newly released book called “Stem Cell Wars: Inside Stories from the Frontlines” by Eve Herold. I don’t like the use of war metaphors, especially in the time of real war, even for politically contentious issues. But Palgrave Macmillan knows more about selling books than I do, so I won’t hold it against the book.

More a chronicle of events than hard hitting analysis, Herold methodically provides the reader a primer on stem cell research and cloning, the politics of science during the Bush administration, and the inside story of the South Korean scientific fraud. For those of us who have watched this issue closely, Herold’s account doesn’t provide any new information but her eyewitness reporting style will have appeal to those who have been watching from the sidelines (and wondering what the heck is happening.)

I think the book could have benefited from a more rigorous examination of the ethical issues surrounding stem cell research beyond the “moral status of the embryo.” Perhaps a forward by bioethicists Laurie Zoloth or R. Alta Charo rather than Harvard physician George Q. Daley would have better served the reader. While Herold does touch on it briefly, she seems genuinely confused why some on the political right continue to equate stem cell research with abortion, because, as she correctly points out, stem cell research could continue unabated even if all abortions were outlawed. Or perhaps her editors decided it wasn’t appropriate to further explore how the stem cell war is also about the abortion war, contraception and IVF war, assisted suicide war, Terri Schiavo war and the broader bioethics agenda of the political right.

The most delightful surprise was learning the story of Bernard Siegel, Founder and Executive Director of the Genetics Policy Institute. It is a fascinating story of how one man, compelled by his concern for the welfare of a supposedly “cloned” child, exposed the Raelian media hoax. All in all, the book is an easy read, puts a human face to the issues, and is an important call to stop the politicizing of scientific research in the US.

Tuesday, September 19, 2006

More Than A Choice


Often, the "pro-choice" versus "pro-life" debate fails to acknowledge the reality of women's lives and is reduced to meaningless sound bites that make good fundraising copy but lousy public policy. Jessica Arons, Director of Women's Health and Rights at the Center for American Progress has just published a compelling new whitepaper: "More Than A Choice - A Progressive Vision for Reproductive Health and Rights." Arons, who is known for her ability to bring together diverse voices and craft a vision for the future, has produced a progressive blueprint for reproductive health and rights.

From the report:
"The core values that ground a progressive understanding of reproductive health and rights in the United States are easily stated but necessarily complex. At the Center for American Progress, we embrace equally the rights to have or not have children, with a partner of one’s choosing, in a time and manner that honors one’s conscience and life circumstances. So many factors shape such weighty decisions that it may be difficult to tackle them all simultaneously, but, at a minimum, it is critical that the reproductive health and rights policies supported by progressives address the reality of people’s lives and the context in which such decisions are made.

The decision to have a child, for instance, is connected to plans for education and career, as well as family. A healthy pregnancy requires quality medical care, a safe environment and emotional well-being. Parents must be able to provide love, attention and stability to their children, facilitated and supported by decent housing, schools, employment, child care, health care, and other societal structures that strengthen family life. In order to prevent or plan for parenthood, people need reliable education about sexuality and access to safe and affordable contraception and abortion care.

Simply put, reproductive rights are about more than just abortion.

Check out the entire report.

Friday, September 15, 2006

Functional MRI Raises Questions

As I write this the scientists at the Medical Research Council Cognition and Brain Sciences Unit (MRC) in Cambridge, England are conducting a test. They are using a new technique, called the functional M.R.I., to peer inside the human brain (Benedict NY Times). This new equipment is allowing them to map the regions of the brain that are stimulated when a patient is put to different tests. By comparing the reaction of a healthy, uninjured brain to that of someone who has been in an accident the scientists can tell what type of damage has occurred.
This brings a whole new level of diagnosing ability when it comes to brain damaged patients. For years physicians have had only the educated guess to rely on as a tool to determine whether a patient was cognizant of what was happening, could feel pain, or had any understanding of them self whatsoever. Through the use of this new software many of these questions can know be answered. The diagnosing physician can have real-time evidence as to the extent of a patient’s injury, and will therefore be better able to perform treatment.
If this new scanning technique can offer as much information as Dr. Adrian Owen, the MRC’s lead brain researcher says it will, then its going to force much of the medical community to rethink some major issues (Benedict NY Times). Specifically, the issue of physician assisted euthanasia, and many of the concerns regarding patient autonomy and the role of decision maker. If patients that previously were thought to be in a “vegetative” state can be shown to have a significant amount of brain function, should that change how they are cared for? Would a situation similar to that of the “Terri Schiavo Case” be handled differently if there could have been evidence of pronounced brain function?
Members of the medical community have differing opinions as to what the impact of the functional M.R.I. will be. It is undecided as to what extent this new technology should be used, and whether it can be fully trusted as a diagnosing tool. Anatomically speaking there is more going on in the brain then just electrical currents passing from neuron to neuron. Dr. Owen admits that this new software doesn’t solve the entire puzzle, but provides a significant piece (Benedict NY Times). Patients who suffer severe brain damage due to oxygen deprivation may show brain activity on the scan, but will never regain consciousness or function as normal, healthy human beings.
Regardless, this new technology gives the medical community a stronger scientific basis to make their case against what often times becomes a discussion of moral and ethical behavior. Euthanasia, the treatment of patients in a “vegetative” state, and even the level at which autonomy of the patient should be deciphered all have to be re-examined due to these recent breakthroughs. Dr. Joseph Fins, chief of the medical ethics division at NY Presbyterian Hospital, said it best, “For now I think what this study does is to create another shade of gray in the understanding of gray matter.”

-Peter A. Beaulieu

Mental Activity Seen in a Brain Gravely Injured, Benedict Carey, September 8, 2006: NY Times (http://www.nytimes.com/2006/09/08/science/08brain.html)

Thursday, September 14, 2006

Genetics in Chicago

Quick heads-up for any of our readers who are in or near Chicago: the Illinois Humanities Council is hosting a Town Hall meeting on the topic, "Future Perfect: Conversations on the Meaning of the Genetics Revolution" on September 26, 6:00-8:00 pm, at the Museum of Contemporary Art Theater. The event is free and open to the public--and it kicks off a year-long program on genetics and society.

More info available here.

[Hat tip: Mark Sheldon at Northwestern]

Monday, September 11, 2006

The 'Moral Chaos' of the Twilight Zone, continued

Earlier, we had posted about how new neurotechnologies might change the way we look at MCS or PVS patients -- just a few days ago, Rob Stein of the Washington Post reported about a young woman was deep in a "vegetative state" -- completely unresponsive and unaware of her surroundings after a traumatic brain injury a little more than a year ago. But then a team of scientists in the UK decided to do an unprecedented experiment, employing functional MRI technology to try to peer behind the veil of her brain injury for any signs of conscious awareness.

What they found was surprising:

The researchers put the woman in a scanner that detects brain activity and told her that in a few minutes they would say the word "tennis," signaling her to imagine she was serving, volleying and chasing down balls. When they did, the neurologists were shocked to see her brain "light up" exactly as an uninjured person's would. It happened again and again. And the doctors got the same result when they repeatedly cued her to picture herself wandering, room to room, through her own home.

To read on, click here.

Chile: Birth Control Free for Women Over 14

Thanks to Chris MacDonald of the Business Ethics Blog for bringing this to our attention:

SANTIAGO, Sep 4 (IPS) - The Chilean government decreed that all public health centres must provide birth control, including emergency contraception, to adolescents and women over the age of 14 -- a measure that immediately drew the ire of the Catholic Church and the right-wing opposition parties.

"We applaud the decision of the Chilean Health Ministry, because we believe it safeguards the rights of women and gives us a chance to interrupt the cycle of poverty," Ximena Rojas, assistant director of the non-governmental Centre for the Development of Women (DOMOS), remarked to IPS.

After President Michelle Bachelet, a pediatrician, took office in March, Domos asked the Health Ministry to expand the distribution of emergency contraception.

The measure, announced Saturday by Health Minister Soledad Barría during the fifth Chilean Congress of Pediatric and Adolescent Obstetrics and Gynecology, forms part of the new "national norms on fertility regulation" that will begin to be applied this month in all public hospitals and clinics around the country.

Any teenage girl over the age of 14 will now be able to directly ask her doctor for a prescription for birth control, without authorisation from her parents, and the contraceptives must be provided free of charge by the public health system.

The new decree complies with the sexual and reproductive rights approved at the 1994 United Nations International Conference on Population and Development in Cairo.

The most controversial aspect of the Health Ministry decree is that it not only covers traditional birth control methods, but also emergency contraception, which up to now was only available free of charge in cases of rape, although it was available by prescription in the country’s pharmacies.

Although it is popularly known as "the morning after pill", emergency contraception can be taken up to five days (120 hours) after unprotected intercourse. The pill works by providing high levels of synthetic hormones, which interfere with ovulation and change the lining of the uterus, significantly reducing the likelihood of pregnancy.

The World Health Organisation (WHO) clarifies that emergency contraception is "not effective once the process of implantation has begun, and will not cause abortion."

But archbishop of Santiago Francisco Javier Errázuriz said the decision by the centre-left government was a blow to marriage, the birth rate, and the Chilean family.

"I was hoping for good news for Chile at the beginning of the month of the fatherland," said Errázuriz, referring to the fact that on Sep. 18 and 19, Chile will celebrate 196 years of independence, and will pay homage to the army. "But it is not good news for a country to be obsessed with contraception."

Several mayors from right-wing opposition parties also rejected the government decree, and threatened not to respect it. (Municipal governments are in charge of administering the public health clinics.)

To read on, click here.

Thursday, September 07, 2006

Entering the Twilight Zone

Although the article in Wired this month about altering PVS (persistent vegetative state) patients consciouness' from persistent to minimal or more is entitled "Back from the Dead", I think a more appropriate title might be "Entering the Twilight Zone". Writer Gary Greenberg attempts to tackle the "moral chaos" that might arise if, in fact, we might be able to restore varying degrees of consciousness to PVS patients with a 'brain shock":

A small but passionate group of doctors say that electricity applied deep in the brain can jolt patients out of irreversible comas. That's when the real problems begin.

By Gary Greenberg

For someone left for dead 12 years ago, Candice Ivey seems to be doing pretty well. She's still got her homecoming queen looks and A-student smarts. She has earned a college degree and holds a job as a recreational therapist in a retirement community. She has, however, lost her ballerina grace and now walks a bit like her feet are asleep. She slurs her words a little, too, which sometimes leads to trouble. "One time I got pulled over," she says in her North Carolina twang. "The cop looked at me and said, 'What have you been drinking?' I said, 'Nothing.' He said, 'Get out here and walk the line.' I was staggering all over the place. He said, 'All right, blow into this.' Of course I blew a zero, and he had to let me go." (To read the rest of the article, click here.)

Designing Children: For Health or More?

The well-educated are significantly more open to the idea of "designing" babies than the poorly educated, according to a new study by psychologists at the University of East Anglia in the United Kingdom; the study had some interesting results including:

* The better educated prospective parents are, the further they are prepared to go to improve their children's IQ.
* Women interpret certain interventions in child rearing as "design acts" more readily than men.
* People over 50 interpret certain interventions as "design acts" more readily than people under 25.
* Because of "parental uncertainty" - the idea than women know for certain if a child is their's whereas men do not -- men show a significantly greater preference than female parents for their children to inherit their own characteristics.
* Parents see different physical, social and intellectual characteristics as desirable depending on the sex of the child.
* Older women and childless women are significantly more willing to "improve" the physical, social and intellectual characteristics of prospective children? (This can be explained by women seeking to increase their genetic heredity, particularly when their time to reproduce begins to decrease.)
* Both men and women see genetic engineering as acceptable primarily for medical applications.

A Carnival of Feminists: Women and Healthcare theme


I had not heard of a 'blog carnival' until blogger No-More-Nice-Girls-Nikki Giovanni (aka Lingual Tremors) sent us an invite to submit to the 23rd edition of the Carnival of Feminists to posted on September 20, 2006. The theme this year is Women and Healthcare, our favorite topic!

You can use the Blog Carnival submission form or email lingualx (at) yahoo. com. Submissions are due by 18 September 2006 at midnight.

Friday, September 01, 2006

Monsters and Motherly Mad (and Bad) Scientists

In mad science films, maternity is both danger and salvation, according to an article in the Scientist by J. Kasi Jackson, an assistant professor in the Center for Women's Studies at West Virginia University:

In my work on female scientists in B-movies, I explore the way that such films deal with our inclination to view science as masculine and nature as feminine. When men are doing the science, this isn't a contradiction; in these films, masculine, rational science dominates and controls irrational, feminine nature. Sometimes, the pattern is obvious, such as when a wild-haired, wild-eyed Frederick Frankenstein (Gene Wilder) from Young Frankenstein (1974) shouts that he will use science to "penetrate into the very womb of impervious nature herself."

But what happens when the mad scientist is a woman?

Instead of being portrayed as madly evil in the Young Frankenstein, messy-haired sense, B-movie female scientists are capable and feminine -- but with a bizarre twist: an emotional, intuitive and maternal drive channeled toward nature. Or as Stacy Alaimo puts it, she is "unfaithful" to those who trained her, "allying herself with the nature she is supposed to control."

A great example is Carnosaur (1993), in which Jane Tiptree (Dianne Ladd), fed up with humans messing up the environment, decides to wipe them off the face of the planet by genetically engineering a virus that causes women to give birth to dinosaur eggs. Although Tiptree is decidedly mad, she is also very feminine -- she alone sports manicured nails, plucked brows, and makeup. She is a maternal (not sexy) female figure, a vengeful Mother Nature who will destroy humanity to save the world. The dinosaurs are her children, literally -- she willingly sacrifices herself to her own virus and dies when a Carnosaur digs its way through her abdomen.

A theme I have noticed in B-movies is that, to escape madness such as Tiptree's, the female scientist must redirect maternal impulses she has about nature towards human children or a romantic partner. In Kingdom of the Spiders (1977), she does both. Scientist Dianne Ashley (Tiffany Bolling) and veterinarian Robert 'Rack' Hansen (played by a typically macho William Shatner) fight human-eating tarantulas. Ashley starts the film on nature's side -- she argues that the spiders kill large animals because pesticides have destroyed their prey, and her preferred solution is to let nature attain a new balance.

In one strikingly classy scene, Ashley, clad in a towel, finds a spider in her dresser drawer. As we wait in delicious suspense for the inevitable shrieks of fear, she instead picks it up and croons: "Well, hello there." But Ashley eventually abandons her inhuman alliance with nature and, along with it, her scientific role; she spends the last part of the film protecting and consoling Hansen's young niece -- and forgetting her initial objection to hooking up with Hansen.

Susan Drake (Ann Turkel) from Humanoids from the Deep (1980) is not so fortunate. Drake genetically engineers fast-growing salmon to replenish a depleted fishery. However, native coelacanths eat the salmon and mutate into half-man/half-fish monsters which are driven to mate with human women and kill all the men. As the voiceover in the trailer aptly summarizes, it's "a battle over the survival of the fittest -- where man is the endangered species and woman the ultimate prize." Drake helps the local people defeat the humanoids, but afterwards she helps the last remaining impregnated woman give birth to one of the mutant monsters, which kills the mother in the process and leaves sequels open to further madness.

In mad science films, maternity is both danger and salvation. If her maternal feelings are linked with nature, the female scientist will create monstrosities that will destroy mankind. The woman scientist who redirects her instincts to people, however, saves people from nature's wild ways, but she must sacrifice practicing science to achieve this. Either way, the choice to mother, and if so, what to mother, will define her.

Monday, August 28, 2006

The Vatican's Intelligent Designs?

My heart sank when I heard that the Pope was preparing to embrace theory of intelligent design ~ according to the Guardian, the Pope expressed concern when he raised the issue in the inaugural sermon of his pontificate, saying: "We are not the accidental product, without meaning, of evolution." ~ but I didn't think that Darwinian evolution necessarily "unseats humanity as master of a divine creation."

I just hope that the Vatican doesn't renege on its apology to Galileo.

To Clone or Not to Clone: Is that the question?

To Clone or Not to Clone: Is That the Question?

A Moderated Panel Discussion
The Women's Bioethics Project will present a moderated panel discussion titled “To Clone or Not to Clone: Is That the Question?” A compelling and broad look at cloning and related issues.
The event will be held in the ACT Theater's Bullit Room on Tuesday, August 29 from 6:00–8:00PM followed by a cheese and wine reception.* This is a free event and space is limited so please RSVP.
The rapid advance of emerging new technologies leave many people bewildered and concerned. This accessible and interactive event is for anyone who is curious about what science, ethics and the arts have to say about cloning and related issues. It will shed further light on the ethical issues raised by stem cell research and cloning.

Panelists:
Paul Abrams, MD/JD, former President and CEO of CEPTYR, who will talk about the science behind adult and embryonic stem cells, therapeutic and reproductive cloning. He will address the following questions: How does adult stem cell s compare to embryonic stems cells? How is stem cell research connected to cloning technologies? What is the difference between therapeutic and reproductive cloning? What is the reality of those technologies today?
Emilie Clemmens, Ph.D., Research Fellow, Women's Bioethics Project, who will discuss the ethical implications of these emerging technologies. She brings her perspectives as a woman, mother, scientist, and ethicist to these critically important questions.
Kurt Beattie, Artistic Director, ACT Theater, who will speak about what the arts have to say about emerging technologies including ACT's upcoming production of "A Number." He will discuss how theatre can shed light on these difficult and complex questions.

Moderators:
Kathryn Hinsch, Founder, Women's Bioethics Project

Petra Franklin Lahaie, Board Member of both Women’s Bioethics Project and ACT Theater


Quote from Kathryn Hinsch, Founder, Women's Bioethics Project: “A key part of the Women’s Bioethics Project’s mission is to help people understand the implications of merging technologies.” said Kathryn M. Hinsch, founder of the Women’s Bioethics Project. “To some, cloning might seem like science fiction. But, in fact, last year, more than 500 bills were introduced at the state level that related to cloning or stem cell research. Since there is currently no federal law banning human cloning, we expect it will be a hot topic in 2006. Just this past year, California, Connecticut, and Massachusetts each passed legislation banning human cloning, but permitting the technique for research purposes. It is something voters need to know about now”

For more, check out the WBP home page.

Friday, August 25, 2006

New technique for developing embryonic stem cells: Does it make a moral difference?

Big news on the stem cell front this week: researchers at Advanced Cell Technology this week reported that they've developed a method for culturing embryonic stem cells from a single cell removed at the 8-cell stage. Removing the cell doesn't harm the embryo or hamper further development; in fact, this is the process currently used for preimplantation genetic diagnosis.

Proponents of the new technology say that it eliminates the major objection of those opposed to embryonic stem cell research: it doesn't destroy embryos. Some disagree, however, arguing that the single cell that is removed also has a right to life. The Vatican, which has long opposed all IVF technologies, says that the new method is unacceptable.

Still others doubt that technological changes can answer the inescapable ethical/moral question of whether embryonic research should be permissible. As Art Caplan told the New York Times (see the third link below), "This isn't a technique that's going anywhere. This isn't an alternative to anything."

Read more all over the place: here, here, and here, for starters.

FDA Approves Plan B's Over-the-Counter Sale

From the Washington Post this morning:


By the end of the year, American women will be able to walk into any pharmacy and buy emergency contraceptive pills without a prescription as a result of a Food and Drug Administration decision announced yesterday.

The decision means women will not have to go to a doctor first as long as they can prove they are 18 or older to a pharmacist, who will keep the drugs behind a counter. Younger teenagers will still need a prescription, and the pills will not be sold at gas stations, convenience stores or other outlets that do not have pharmacists.

The approval marks the first time a hormonal contraceptive will be broadly available in the United States without a prescription. The pills, which will be sold as Plan B, will probably cost about $25 to $40 per dose, and men will also be able to buy them.

The announcement was aimed at resolving one of the longest and highest-profile health controversies of the Bush administration, but opponents said they are considering plans to block the decision, either in court or in Congress.

To read on, click here.

Thursday, August 24, 2006

Is meat-packing better regulated than the tissue transplant industry?.

We've all heard a bit in the news lately about the need to better regulate the tissue transplant industry. Inadequate screening transplant tissues for disease and decomposition has led to several fatal events for transplant receivers, and new stories of illegal tissue harvesting have scared the beejezus both of potential receivers and kin of the deceased.


As organ and tissue transplantation has become more viable and more commonly practiced, the demand for donor tissues and organs has increased. An industry of companies that harvest and provide tissues for transplant has surfaced to meet this demand. Almost any kind of tissue may be handled by this industry, including organs, skin, and bone. So how exactly is it that companies who provided this service were not required to register with the FDA until 2004?


It seems that prior to 2004 regulation of transplant tissues paled in comparison to that of the meat-packing industry. How is it possible that tissues that we eat and pass through our bodies are better screened than those that are placed permanently in our bodies? While my knowledge of the immune system is far from up to par, it seems to make biological sense that its easier for my immune system to fight off a population of bacteria originating from a food that passes through the digestive system, as there it will at least be partly processed and degraded, unlike a bacterially infected tissue that takes permanent home with other bodily organs and tissue.


New developments have surfaced since first beginning this writing in July 2006. Just this month, the FDA ordered the human tissue recovery firm Donor Referral Services (DRS) to shut down its operations, finding “serious deficiencies in its manufacturing practices, including those governing donor screening and record keeping.” I find this astounding. It seems that at every suspect outbreak of mad-cow disease, there is a barrage of public health warnings and media hype, quickly followed by indications that the disease path as been tracked and the origination determined and quickly shut down. Amazingly, records and manufacturing processes for tissue recovery and donation seem much looser. Case in point is the instigation of the shut down of DRS: “FDA's inspection identified serious violations of the regulations, including the failure to establish and maintain procedures for manufacturing steps...FDA also found several instances where records provided by DRS to another HCT/P establishment were at variance with the official death certificates FDA had obtained from the state where the death occurred.”


The FDA's new regulations for tissue recovery and transplant services took effect in May 2005. “Among other mandates, the regulations require firms to properly screen and test donors and, when needed, they enable FDA to take swift action in the interest of public health.” Better late than never I suppose; but I can't help but suspect that both the industry and the FDA is saving face for not implementing preemptive regulation long ago.



New regulations for donor eligibility and screening can be viewed here: http://www.fda.gov/bbs/topics/news/2004/NEW01070.html

Press release on DRS shutdown: http://www.fda.gov/bbs/topics/NEWS/2006/NEW01433.html


Tuesday, August 22, 2006

Experimental treatments: a constitutional right?

From the London Times Online:

Giving unproven drugs to terminal patients won't save lives in the end.

ABIGAIL BURROUGHS, a 21-year-old American, died from squamous-cell carcinoma of the head and neck in 2001. According to her father, Frank, she didn’t need to die. There were drugs in development that might have reined in the malignancy, but the experimental therapies were being tested on cancers in other parts of the body.

“She had the right cells in the wrong place, and she didn’t qualify for any of the clinical trials,” her father recalls. Shortly after her death, he founded the Abigail Alliance for Better Access to Experimental Drugs. This summer it scored a breathtaking victory in the courts against the Food and Drug Administration. The District of Columbia Circuit ruled, by two to one, that a patient with a terminal illness or untreatable disease had a “fundamental right” under the Constitution to experimental drugs that have passed only preliminary (Phase I) tests, and are thus a long way from approval.

The little-reported decision is already having deep repercussions in the medical world, and is likely to end up in the Supreme Court. While patients welcome the decision, regulators and clinical researchers fear that such early, wide access to experimental drugs will make it harder to obtain the clear, long-term data needed to prove efficacy. Patients may decide an unproven drug is a better gamble than ending up on a proven, but marginally effective, medication. An article in the New England Journal of Medicine this month points out that only 11 per cent of drugs — and only 6 per cent of cancer drugs — that enter clinical testing are ultimately approved; the rest are either too toxic or don’t work.


To read on, click here.

Quote of the Day: "Politicians sell terror and fear; pharmaceutical companies sell disease."

From the Christian Science Monitor: Drug ads sell a problem, not a solution

It is an old saying in the advertising trade that you sell the problem, not the solution. That helps explain why the media today are awash with images of disease. Erectile dysfunction, depression, stress, attention deficit disorder, on and on - you can't escape them and the sense of looming peril that they conjure up.

Politicians sell terror and fear; pharmaceutical companies sell disease. Every state and stage of existence has become a pathology in need of pharmaceutical "intervention," and life itself is a petri dish of biochemical deficiency and need. Shyness is now "social anxiety disorder." A twitchy tendency has become "restless leg syndrome." Three decades ago the head of Merck dreamed aloud of the day when the definition of disease would be so broad that his company could "sell to everyone," like chewing gum.

That day is rapidly approaching, if it's not already here. "We're increasingly turning normal people into patients," said Dr. Lisa M. Schwartz of the Dartmouth Medical School. "The ordinary experiences of life become a diagnosis, which makes healthy people feel like they're sick."

In one sense, the ads have been successful. The Kaiser Family Foundation found that every dollar drug companies spend on ads brings more than four dollars in additional sales. But for most others, the result has been soaring medical insurance costs, toxic side effects, and new tensions between doctors and patients, who increasingly badger doctors for the drugs they've seen on TV.

One study found that 30 percent of Americans have made these demands. A Minnesota doctor complained recently that patients now push him for sleep medications "when maybe they just need to go to bed on a more regular basis."

But perhaps the worst part is that prescription drug ads have immersed us all in a pervasive drug culture that seems to have no boundaries. We are being reduced to helpless "consumers" who have no capacity to deal with challenges other than by taking a pill. Last month Tim Pawlenty, the Republican governor of Minnesota, called for a moratorium on prescription drug ads. It's about time.

For most of the past half century, there were tight restrictions on the general advertising of prescription drugs. These require doctors' guidance for a reason; so why should Madison Avenue get involved? But under heavy pressure from the drug and advertising industries, the government backed down in the late 1990s, and that started the tsunami.

Spending on drug ads for the general public more than tripled between 1996 and 2001. It is now some $4 billion a year, which is more than twice what McDonald's spends on ads. In 1994, the typical American had seven prescriptions a year, which is no small number. By 2004, that was up to 12 a year. Homebuilders are touting medicine cabinets that are "triple-wide."

The industry says this is all about "educating" the consumer. But an ad executive was more candid when he said - boasted, really - that the goal is to "drive patients to their doctors." Reuters Business Insight, a publication for investors, explained that the future of the industry depends on its ability to "create new disease markets." "The coming years," it said, "will bear greater witness to the corporate-sponsored creation of disease."

The Kaiser study found that drug ads increase sales for entire categories of drugs, not just the one in question. The ads really are selling the disease more than a cure.

Advertising is just one way the industry has sought to accomplish this goal. It also funds patient advocacy groups such as Children With Attention Deficit Disorder (CHADD), and doctors who push for expanded definitions of disease, among a host of other things. (When the definition of ADD expanded in the 1980s, the number of kids tagged with this problem increased by 50 percent.)

But advertising is the most pervasive and aggressive way of selling sickness. It also is the hardest to justify. Medicine is supposed to be about science, not huckstering; about healing people, not persuading more of them that they are sick. There are far better ways to inform the public about health issues than to spend billions of dollars a year pushing pills.

This is why more than 200 medical school professors recently called for an end to prescription drug ads, and why close to 40 health and seniors groups have joined them. Even the American Medical Association, many members of which have close ties to the pharmaceutical industry, has urged restrictions. Washington should listen to these doctors. As Governor Pawlenty put it, we need to put "the decisionmaking back where it should be - on an informed basis between the patient and the doctor."

Thursday, August 17, 2006

Over 50? - No Flu Vaccine for you!

Is this good social policy? :

The question is raised in a provocative report by two government scientists about who should get scarce medical resources. They argue that the standard policy for flu vaccinations that favors older men and women over younger adults should be changed in preparation for a possible pandemic of avian flu.

Ordinarily, people over 65 and those who have chronic illnesses are given priority. As a group, they are the most vulnerable. Protecting the most vulnerable saves the most lives.

But avian flu is not an ordinary flu. Chances are, it will never turn into a global catastrophe, but if it did, some researchers speculate that it could lead to 90 million cases and 1.9 million deaths. There is no way to manufacture enough vaccine in time to protect everyone in the United States. So who should get the potentially lifesaving vaccine?

"This is a tragic choice," says bioethicist Ezekiel J. Emanuel at the National Institutes of Health, who with his colleague Alan Wertheimer suggested an alternative policy in a report in the May 12 edition of Science magazine.

Both the rebel authors and the traditionalists (that is, the government's National Vaccine Advisory Committee and the Advisory Committee on Immunization Practices) would give top priority to those working to manufacture and distribute the vaccine and to front-line health care professionals. And both would give preference to key government leaders. The fight is over what's left for the general public.

The rebels challenge the principle of saving the most lives. What about saving people with the most years yet to live?

Their formula is based on the principle that all people deserve the chance to live out their lives and grow old -- especially teenagers and young adults who have survived childhood and face many decades ahead. Twenty-year-olds, for example, are more "valued than 1-year-olds because the older individuals have more developed interests, hopes and plans but have not had an opportunity to realize them," write the authors.

Presumably, really older individuals -- those over 65 -- have had all the opportunities they need to realize their hopes and plans and interests -- so they are less valued than 20-year-olds.

In the new formula, the winning age cohort in the vaccine rationing sweepstakes would be healthy people 13 to 40. Next in line would be those 7 to 12 and people 41 to 50. After 50, forget it!



If women don't care, who will?

Interesting, if not somewhat distressing, post in the Australian Mercator that asks "if women don't care, who will?", suggests that there has been a 'decline in female altruism' and the 'feminine ethic of service'.

"This feminine ethic of service, marked by attentiveness to the person and concern for their integral (moral and cultural as well as physical) good, is the great contribution women can make to professional life and the workplace in general. To grasp this is to see a solution to the work-life dilemma. Once 'life' -- relationships in the family, with others -- is understood in terms of mutual service, work finds its proper purpose and place."

Who said women are the only ones who care? Shouldn't this "ethic of service" apply to both sexes?

Thursday, August 10, 2006

Yet Another Reason to Support Universal Health Care Coverage: To Protect Our Future

From the Kaiser Network:
Colorado Children Without Private Insurance Have Higher Mortality Rate
In Colorado, uninsured children and children enrolled in Medicaid who are hospitalized at Children's Hospital in Denver are twice as likely as those with private insurance to die after hospitalization, according to a study published in the journal Pediatrics, the Denver Rocky Mountain News reports. For the study, two physicians at the hospital looked at hospitalization rates per 100,000 children ages six months to 18 years. The study finds that children enrolled in Medicaid are twice as likely as those with private insurance to be hospitalized for vaccine-preventable illnesses, complications of diabetes and asthma, and ruptured appendices (Brand, Denver Rocky Mountain News, 8/7). Regular preventive care visits by uninsured children and children enrolled in Medicaid would save Colorado $46 million, according to the study. The study also finds that the number of Colorado pediatricians who are willing to see Medicaid beneficiaries fell from 41.4% in 2000 to 23.9% in 2003. Eighty-three percent of Colorado pediatricians in 2003 said Medicaid reimbursements did not cover the cost of office visits (Auge, Denver Post, 8/7). Stephen Berman, head of general pediatrics at Children's Hospital and co-author of the study, said, "The paper, for the first time, provides the data that show there are huge potential savings in caring for these kids." Berman added, "The mortality rates are higher for children on Medicaid. They are higher because they are sicker, and they didn't get their primary care" (Denver Rocky Mountain News, 8/7).

Online An abstract of the study is available online.

Wednesday, August 09, 2006

America's New Comic Book Superheroine and the Cost of Caring


I love this concept!: America's first true female super-hero since Wonder Woman ~ Carrie Giver. Conceived for the Caregiver Credit Campaign,the feminist superhero will "have politicians and hairdressers, women and girls, hardhats and female executives, right along with caregivers re-thinking personal and social policy, including Social Security. Carrie Giver will be kicking butt in the name of hundreds of millions of people, especially mothers, who give care to the young and old alike each and every day."

More from the designer's website: "This timely comic book reflects the attention now being paid to America's rapidly growing mammogram generation (squeezed on both sides), soon to be in need of care themselves - e.g., aging baby boomers. The trend of first time Hollywood moms, posed against both a right wing view of motherhood-or-nothing and the career-first pressures of still many other women, make this the perfect time for media outlets to talk about the value of caregiving to both children and older people. It affects 100 percent of Americans, and is a worldwide concern as western nations age. We all come into the world in need of care. We all exit the same way. Sooner or later, most of us become caregivers."

An Act of Kindness and Conscience and equitable distribution of resources

Kudos to Gilead Sciences Inc., maker of the world's best-selling AIDS treatment: they are offering to help generic- drug makers in India produce the medicine, a move intended to get the life-saving pill to millions more people in the world's poorest countries.

Since 2004, Gilead has twice slashed its price for Truvada, a drug that combines the company's best-selling pill, Viread, and another medicine. Gilead now sells Truvada to poor African nations for 87 cents a day, compared with $24.51 in the U.S.

Still, only 45,000 to 50,000 of the 6.5 million people in poor countries who need AIDS drugs to stay alive are receiving any of Gilead's medicines. To get the drug to more patients, Gilead is handing over its manufacturing secrets to generic companies who may be able sell the drugs for even less.

``We think they can beat our prices and we would love to see that happen,'' said Gregg Alton, Foster City, California-based Gilead's general counsel, who is working on the negotiations with 10 Indian drugmakers. ``We're going to teach them everything they need to know to make the product.''

Monday, August 07, 2006

Women's Bioethics Project and Center for Women Policy Studies Organizations Launch State Legislative Advisory Board on Women and Bioethics

First Meeting to Convene at the National Conference of State Legislatures in Nashville

SEATTLE--(BUSINESS WIRE)--Aug. 7, 2006--The Center for Women Policy Studies and the Women's Bioethics Project (WBP) today announced the formation of the first-ever State Legislative Advisory Board on Women and Bioethics. The bipartisan 15-member board is made up of progressive state legislative leaders from around the country. The first meeting of the newly formed board will be held in conjunction with the annual meeting of the National Conference of State Legislatures (NCSL) on Monday, Aug. 14, 2006, 3-5 p.m. at the Gaylord Opryland Resort & Convention Center in Nashville, Tenn. The meeting is open to the public.

The advisory board meeting will feature a presentation by Dr. Robin N. Fiore, who is the Adelaide R. Snyder Professor of Ethics at Florida Atlantic University. Dr. Fiore's presentation will cover a full range of bioethics issues ranging from end-of-life issues and the effect of the Terry Schiavo case to stem cell research and its impact on women's reproductive rights and health. Following the presentation, the legislative leaders attending the meeting will assist the Center for Women Policy Studies and the WBP in planning a Bioethics Seminar for Women State Legislative Leaders, which will take place in 2007.

According to Leslie R. Wolfe, Ph.D., president of the Center for Women Policy Studies, "This meeting will provide a forum for state legislators to discuss the challenges they face in understanding the ethical implications of legislative issues pending at the state level." Wolfe, whose organization works with legislators on a range of key policy issues, noted that, "State legislators need support to preserve women's decision-making rights on all these complex issues."

"We are delighted to have such an impressive group of state legislators to advise us. We are focusing on the state legislative level because that's where many of these complicated bioethical issues tend to emerge," said Kathryn M. Hinsch, founder of the WBP. "We firmly believe that women's voices need to be heard, because women are uniquely affected by issues in biotechnology and healthcare. By providing legislative leaders with the support they need to champion these issues, we can help ensure that the entire spectrum of human experience is represented on these critical issues."

The founding members of the state legislative bioethics advisory board are listed here:

-- State Senate Majority Leader Lisa Brown, Wash.

-- State Senator Patrice Arent, Utah

-- State Senator Joan Bray, Mo.

-- State Senator Pam Brown, Neb.

-- State Senator Jennie Forehand, Md.

-- State Senator Karen Fraser, Wash.

-- State Senator Nia Gill, N.J.

-- State Senator Toni Harp, Conn.

-- State Senator Maggie Tinsman, Iowa

-- Former State Senate Majority Leader Lana Oleen, Kan.

-- State Representative Kathy Hawken, N.D.

-- State Representative Linda Lopez, Ariz.

-- State Representative James Roebuck, Pa.

-- State Delegate Jean Cryor, Md.

-- State Secretary of Administration Viola Baskerville, Va.

About the Center for Women Policy Studies

The Center for Women Policy Studies is a Washington, D.C.-based think tank and was founded in 1972. It works with policy makers on such women's human rights issues as reproductive rights and health, international trafficking of women and girls, and the alleviation of women's poverty. (http://www.centerwomenpolicy.org)

About the Women's Bioethics Project

The Women's Bioethics Project (WBP) is an independent, nonpartisan, public-policy think tank based in Seattle. WBP is dedicated to ensuring that women's voices, health concerns and unique life experiences are represented in discussions and decisions about ethical issues in healthcare and biotechnology. (http://www.womensbioethics.org)

Administration to set health care information standards

Washington Post Staff Writer
Monday, August 7, 2006; Page A04


The Bush administration will soon launch an ambitious effort to require that all providers of federally financed health care adopt quality-measurement tools and uniform standards for their information technology, Health and Human Services Secretary Mike Leavitt said Sunday.

The goal of the initiative, Leavitt said, is to reduce health-care cost inflation while increasing the quality of medical services individuals receive.

The executive order would affect doctors and hospitals serving the Medicare population of elderly Americans and people served by any other federally financed service.

It would require those health providers to join with the government to standardize the requirements for information technology systems coming into their facilities; set standards for care of specific health problems; and develop uniform methods of measuring and reporting the outcomes of treatments.


Distribution of Resources Curing Hunger and Malnutrition One Spoonful at a time

One area in bioethics that does not get enough attention is equitable distribution of resources -- maybe it is because it's bound up in politics, maybe because of human greed, but whatever the reason, it is heartening to see a story like this one:

Swollen bellies, orange hair, listlessness and dull eyes — these are the traits of child malnutrition in Haiti, the poorest country in the Western Hemisphere and where roughly one of every three children is chronically malnourished.

To try to change that statistic, Patricia A. Wolff, M.D., associate clinical professor of pediatrics. at Washington University School of Medicine in St. Louis, founded Meds & Food for Kids (MFK) in 2004, after she saw that medications and small amounts of the local staples rice, beans and corn weren't enough to nourish children back to health.

MFK works to combat childhood malnutrition and related diseases in northern coastal Cap Haitien, Haiti's second-largest city, by giving Ready-to-Use Therapeutic Food (RUTF) to malnourished children between 6 months and 5 years old. The mixture, known to Haitians as "Medika Mamba," or peanut-butter medicine, is a nutrient-rich mixture of peanuts, sugar, oil, vitamins, minerals and powdered milk. It is distributed in plastic containers for families to feed their children at home and can be stored for several months.

Children start to show visible signs of improvement about 1-2 weeks after receiving the peanut-butter mixture, becoming more active and growing new black hair. One course of the six-week treatment, which can be enough to renourish the child, costs under US$100.

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(the next step is to make sure that the women giving birth are adequately nourished!)

(Image courtesy of Washington University School of Medicine)




'Fresh Embryos' -- On Sale Now!

The American Society of Reproductive Medicine has been reluctant to invoke standards for fertility clinics, but maybe this latest development will prompt them:

Ethical row over world's first 'made to order' embryos

By Julie Wheldon, Daily Mail 21:46pm 4th August 2006

The world's first human embryo bank has been launched offering 'bespoke babies' for infertile couples.

For around £5,000 couples can buy ready-made embryos matched to their specific requirements - even down to choosing what eye and hair colour they would like their child to have.

In each case the embryos are made from eggs and sperm from two donors who have never even met. The moment of conception occurs in the laboratory and is determined by the genetic combination the clinic thinks will best meet the needs of the paying couples on its books.

'Special offers'

Ethical campaigners last night condemned the move as the "absolute commercialisation of human life." They said it was heart-breaking that babies are now being treated as the equivalent of a supermarket "special offer".

Currently in the UK where one partner is infertile a couple can use donated sperm or eggs to create an embryo to be implanted in the woman's womb. Some couples can also use left-over embryos no longer needed by others who have undergone IVF.

But the new service is totally different as it allows couples to buy fresh embryos that fit their requirements but which have no biological link to either of them.

The human embryo bank is being run by The Abraham Center of Life in San Antonio in Texas. Although the clinic is in the USA, British women are expected to fly over for treatment.

It boasts that its sperm donors all have doctorate degrees and most of its egg donors have college degrees, are under 25 and healthy. So far most of the couples on its waiting lists are happy just to get an embryo and have not set out detailed requirements.

Waiting list for Aryan children

However some have asked for - and been allowed to join list of recipients that will get - embryos made from blond haired and blue eyed donors.

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